Be Kind. Psoriasis Isn’t A Competition.

“Be kind, for everyone you meet is fighting a hard battle.”

IMG_1956I recently participated in the National Psoriasis Foundation and Healthline.com‘s #PSelfie Photo Campaign, a wonderful social media initiative launched to support and empower those who are living with psoriasis.

I shared this photo and received a negative comment about it being a “joke” and that I’m not someone who “really has it.” I’ve Be Kind. Psoriasis Isn't A Competition.had varying degrees of psoriasis for more than half of my life and have recently started to flare up again after being clear throughout my pregnancy. True. It’s not the worst it has ever been, but psoriasis isn’t a competition! Everyone has a unique experience with it and their own story to tell.

I chose to share that particular photo because those spots were brand new, having appeared overnight and they took form of the Little Dipper – which is kinda fun. I didn’t share the spots on the more risqué parts of my body or the ones that Koebnered my healing c-section scar or the ones on the parts of my post-baby body that I’m not quite ready to bare to the world.

I know my own personal experiences and struggles with psoriasis, so I can brush it off. But someone else may be discouraged to share and openly discuss their skin if they think someone will have a negative response.

So I ask you all to be kind, sometimes all you’re getting is a small glimpse into someone’s personal journey.

Just A Girl With Spots

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12 thoughts on “Be Kind. Psoriasis Isn’t A Competition.

  1. So very true! My medicine that I am taking I don’t look like I have it all, but it I stopped taking it I would be almost cover and crippled with the arthritis too. I am so inspired by you and thank you so much for sharing all that you do. It takes a lot of courage.

  2. Good for you! Psoriasis breakouts come and go. Sometimes not too bad and other times simply terrible. We should be kind to each other; everyone’s experience is different and we should support each other!

  3. Hi Joni,
    I had the pleasure of meeting you at the psoriasis study at Chelsea Piers a few months ago. Congratulations on your baby’s birth and enjoy motherhood, it’ the best. I love reDing your blogs and unfortunately at this time my face is in full bloom and I’m devastated and don’t even want to leave the house. Any suggestions?
    Best,
    Lois

    Sent from my iPhone

    >

    • Hi Lois, So great to hear from you! Thanks so much, we’re head over heels in love with her and enjoying every minute. When I have spots on my face, I usually wash with a cream cleanser designed for dry skin, then use coconut oil as a moisturizer. For makeup, I use a primer then a tinted moisturizer with SPF and a light dusting of powder to seal it. It’s also going to be a beautiful day, get outside and get some sun, NYers are so wrapped up in themselves so I bet nobody notices. Best of luck, let me know if I can help with anything else 🙂

  4. Pingback: The Initial Diagnosis. It’s Psoriasis. | Just a Girl with Spots

  5. Hi. Thank You for sharing. Ive also been suffering psoriasis since I was college. Til now, its really making me loose my self confident. Specially that I could no longer wear the clothes and dress I usually wear before, since my spots had been so very visible all around my two legs and even on my head in my hairline. But im looking forward to get the strength and energy to regain my confident.

  6. I had tried all the medications and even rituals hoping that this will be cured but I guess the only remedy I can have to keep my head up high and show them I am still confident. though not this time, but somehow in the near future. Wanna hear more from you guys. Coz I feel like I had found my comfort zone upon sharing my experience with you.

  7. Psoriasis is so frustrating. Then you get beep making stupid comments. It just adds to the frustration. I had people tell me my photos don’t look like psoriasis. Really? I agree with you psoriasis is not and should not be a competition. Psoriasis has made me hypersensitive. I’m a completely different person when my skin clears. My mom said it best, ” if you don’t have something nice to say, don’t say it at all.”

  8. Since I was 13 years old I’ve had psoriasis all over my face, my scalp, behind my ears and on my neck, so I understand how horrible and painful it is. When I was a teenager I wore makeup to cover my skin and I was always painfully self conscious about it. When I got older I stopped wearing the makeup and tried very hard to accept that psoriasis was just something I’d always have to live with. Then one day my husband and I tried eating fermented pickles because we were trying to find ways to get more probiotics. Within three days of eating just one pickle and a little juice a day all of the symptoms of my psoriasis was completely gone. When I researched the internet about it I found that there’s a probiotic in fermented pickles that helps with both psoriasis and eczema. If I stop eating the fermented pickles the symptoms of my psoriasis comes back within three days. The only pickles that have probiotics in them are the naturally fermented ones like Bubbies pickles. At least that’s the brand we get. We also ferment our own cucumbers to make pickles sometimes and hopefully one day we’ll get the spices right. The pickles in the grocery store that have vinegar in them has no probiotics because vinegar kills probiotics. I know it sounds crazy and at first I was so shocked that something as simple as fermented pickles could take away the pain of psoriasis, but it really works. It’s been a God-send for me.

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