Nothing about psoriasis is cute, so even if you openly talk about your condition with the online world, chances are you’re not super comfortable posting every detail about your flakes on all of your social media channels.
I recently got the chance to start working with Flaym, an awesome new online psoriasis community as an official ambassador. It’s a social media network just for people with psoriasis to talk all things spotty. It reminds me of a Facebook/Twitter combo without the pictures, so it’s got a true social feel unlike other communities that are more message board focused.
Flaym is a product of the Leo Innovation Lab and its mission was to create a friendly community of people offering support and advice on psoriasis. I’ve been using Flaym for about a week and a half and I definitely think they’re on their way to accomplishing that goal and have created a unique space for psoriasis friends to gather!
It’s amazing how open and honest the community is about their day-to-day lives with psoriasis and overall such a funny, positive attitude about their spots. Even though I openly talk about my psoriasis, I would probably never post about my blizzard ponytail on my personal social networks because there is still a lot of education to be done about psoriasis. But on Flaym, I am confident there will be no judgement and that most people will know exactly how I feel!
I’ll be writing again in about a month to follow up on my Flaym experience, but in the meantime come join me on Flaym (@joni) and let me know what you think!