This week, beginning May 1, during Arthritis Awareness Month, is the inaugural Psoriatic Arthritis (PsA) Action Week being spearheaded by the National Psoriasis Foundation. PsA Action Week is an initiative to provide information about diagnosis and treatments to those with PsA and also to help people living with psoriasis understand the symptoms of psoriatic arthritis and how to get treatment if at risk.
According to the National Psoriasis Foundation, “more than 8 million Americans live with psoriatic disease, a chronic, immune-mediated disease that is treatable, yet has no cure. Approximately one in three people living with psoriasis may be at risk for developing PsA. NPF aims to ensure that all patients know the symptoms of PsA and how to best treat the disease to live full, active lives. Studies show that delaying the treatment of PsA for as little as six months could result in permanent joint damage.”
As a person living with psoriasis, I believe it’s crucial to understand the symptoms and risk associated with psoriatic arthritis as there is a possibility of being diagnosed in the future. Some of the amazing people I’ve met through psoriasis advocacy are also living with PsA and I know that sometimes everyday tasks can be painful and challenging.
The wonderful people at the NPF understand those challenges and in honor of PsA Action Week, have created some amazing tools and events and tools to support both people living with PsA and for those with psoriasis.
- Living with PsA: A questionnaire about how the disease is currently impacting their life. Those who submit the questionnaire will receive a personalized electronic tool kit to help manage their disease and can speak to someone from the Patient Navigation Center to learn more about PsA.
- Living with Psoriasis: There is a screening tool for people living with psoriasis to understand if they are at risk for developing PsA, what to do if they are and how to monitor symptoms if the risk is low.
Today! May 3 @ 3:30p EST, the NPF will go live on Facebook with Erin Faulhaber, a NPF volunteer living with Psoriatic Arthritis. Erin will discuss stress and how she works with the Patient Navigation Center to manage her disease. She will share her personal tips to de-stress, relax and unwind. Head over to the NPF Facebook page at 3:30p EST to check it out!
Friday, May 5 @ 4p EST, Rheumatologist R. Peter Bonafede, M.D., FACR of the Providence Arthritis Center at Providence Portland Medical Center will go live with Patient Navigation Center Associate Director Kathleen Carter to discuss various aspects of PsA and will share his insights about psoriatic arthritis symptoms, treatment and disease management.
Washington D.C. Congressional Briefing
On Thursday, May 4, the National Psoriasis Foundation will hold a congressional briefing in Washington DC to educate members of congress and staff about the serious issues people living with PsA face on a daily basis. The objective is to provide information about the way those working in the government can support individuals living with PsA and the clinicians and researchers working to improve treatment and management of PsA. Attendees will hear from an individual living with psoriatic arthritis, Randy Beranek, NPF president and CEO, and NPF Medical Board Member, Evan Siegel, M.D., FACR, Arthritis and Rheumatism Associates, PC. For more information and to RSVP to attend this briefing, please email Katie Olson at firstname.lastname@example.org.
Make sure to check out the NPF Blog, Twitter and Facebook posts all week for personal stories and experiences of people living with PsA, expert tips and more information on PsA. Follow #PsAActionWeek on Twitter for updates.