Back in March, I wrote about my initial experience working as an official ambassador with Flaym, a new social community created just for people with psoriasis. It reminds me of a Facebook/Twitter combo without the pictures, so it’s got a true social feel unlike other communities that are more message board focused. Flaym is a product of the Leo Innovation Lab and its mission is to create a friendly community of people offering support and advice on psoriasis.
I wrote my original post when i had been using Flaym for about a week and a half. Two months later, I’m still talking to people on Flaym and enjoy seeing new people joining daily to talk to others with psoriasis.
The site is easy to explore and allows you to participate as much or as little as you’re comfortable with. There’s an option to post a topic yourself, reply to someone else’s post or simply click an emoji to react to a post or comment. Emoji emotions include Love, HaHa, Sad and Angry because psoriasis has lots of emotions.
The topics that people post about are all-compassing about different aspects of psoriasis – treatments, experiences, questions, feelings, a place to vent, a place to connect, etc. The official Flaym Topics to choose from include: Strangers, Friends & Family, Dating, Relationships, Sex, Parenting, Diet, Exercise, Money, Healthcare System, Travel, Treatment, Coping, Itch, Looks and Secrets, so there’s a wide variety of discussions to explore. Personally I’ve told my hilarious (go with it) tales that only others with psoriasis could appreciate, I’ve asked questions, vented some frustrations and hopefully helped a few people with some requested advice.
Unfortunately like any support groups or communities, there are the trolls that try to prey on people looking for relief and try to sell a cure but the wonderful admin is quick to catch them and ban them from the site. There’s a few know-it-alls, like any aspect of life, who assume what works for them is the only way to do it. But overall the people who use Flaym are genuine and are just looking to connect with others who understand how they feel and find support in their journey with their disease.
The site is still relatively new and they love feedback to optimize the user experience to be the best for the community of people using it. If you haven’t already, sign up at www.flaym.io to give it a try and be sure to follow me @joni.